Pediatric IBD: Just the Facts

Facts about Pediatric IBD

  • Pediatric Inflammatory Bowel Disease, or IBD, is a group of chronic diseases resulting from inflammation of the small and/or large intestine. The two most common of these diseases are Crohn’s disease and ulcerative colitis
  • IBD is the fastest growing chronic gastrointestinal immune disorder in children
  • It is a lifelong disease for which there is no cure
  • Children with IBD experience pain, frequent trips to the restroom, fatigue, and failure to grow
  • In the US alone it is estimated that over 100,000 children are diagnosed with IBD
  • IBD is increasing nationally and internationally among ALL ethnic groups
  • The average age at diagnosis is 11, but IBD can affect children even in the first two years of life
  • Costs of research are outpacing federal funding capabilities (especially in the face of health care reform)
  • 70% of patients do not have a family history of IBD
  • Ashkenazi Jews have a four to five times higher incidence rate of IBD diagnoses than non-Jews

Facts about the Pediatric IBD Program at Cedars-Sinai

  • The Cedars-Sinai Pediatric IBD Program has been open for 11 years
  • The Pediatric IBD Program provides a home for patients and families who suffer from IBD‐a place they feel safe and a place where they are heard and cared for
  • Children and young adults from all over the world visit the Pediatric IBD Program for diagnosis and treatment
  • Nearly 1,000 patients have been treated by the Cedars-Sinai Pediatric IBD Program
  • 50% of the Program is funded by donations
  • The Program is a model for patient-centered care with an emphasis on healing
  • The Pediatric IBD Program will persist as long as IBD is a threat to the wellbeing of our children